I was pushing Jack on the swing. He asked me to push him on his butt because his back was hurting. I didn't pay much attention.
Later we noticed a bump there. We took him to have it looked at. The doctor scheduled an MRI.
I got to be in the room with him. It was an open-sided MRI machine. It looked like a giant UFO. We talked about being an astronaut and pretending to be a Pokemon.
I reminded him he had to be very still. I remembered my own MRI and how I was enclosed and cried through the whole thing. I would tell him that story when he was finished with his own. He laughed. He was braver than I was. I told him I was claustrophobic. He told everyone I had a disease.
The technician taped a vitamin to his back so the radiologist would be able to focus on the spot we were concerned with when reading the films. I couldn't stop thinking of the story of the Princess and the Pea, worrying that he wouldn't be comfortable laying on that vitamin.
After 35 minutes, they conveyored Jack out and we waitied for the doctor to read the films to see if he needed the contrast injection. It took 20 minutes for that decision, with Jack still strapped down and me rubbing and rotating his legs, which had begun to go numb and tingly. The doctor was consulting with a patient with sad news after a mammogram. I wondered if that would be us soon.
Jack needed the contrast. His eyes got big, he started breathing heavy, but was fine after he heard everything that was going to happen and she showed him all of her tools. Jack has to have an explanation and see all the implements before moving forward. His doctors and dentists know this about him. Seven more minutes and he was done.
We couldn't wait for our results. We had to go pick up Luke. We would have to distract ourselves for 48 hours and try not to think the worst. The radiologist called 15 minutes later with a preliminary report. I ran home and jumped on the Internet. Probably a mistake given the oodles of information with no specific explanation behind it.
We kept the weekend full. We went to see Harry Potter. Jack and John went to a Cardinal game. Jack played in his All-Star game. Jack and Luke had a sleepover at meemaw's. John and I went to a Cardinal game. I tried to ignore Jack's unopened box of school supplies on the dining room table. I can be too grim.
The doctor called. Syringohydromyelia. A rare disorder. Jack has always been unique and continues to be so, even in illness. Jack hasn't been experiencing symptoms from the disorder so may just need monitoring and not surgery. We have an appointment with a pediatric neurosurgeon to figure out our next steps.
The bump the vitamin was taped to? Didn't even show on the MRI. Without the bump, we wouldn't have discovered the syrinx in his spinal cord. And maybe we didn't need to. Maybe Jack would have gone his whole life never experiencing symptoms. Or maybe not. I have to think that bump showed up for a reason.